19:02:29 From Karen James to Everyone: https://www.ateamde.org/past-meetings - link for all past meetings - please keep this link for your records and feel free to share with others 19:05:23 From Karen James to Everyone: https://whyy.org/articles/delaware-direct-support-professionals-low-pay/ 19:29:27 From Joan Kelley, DE FIMR to Everyone: What impact will our population of adult children will be req'd to "work" 80 hours per month and who makes the decision. My son works 6 hours per week and there are no other opportunities for him to work more. What risks am I facing for his LTC M/A? 19:33:22 From Gerrity Family to Everyone: The cost-shifting plan seems doomed to implode. Hospitals are already in bad shape. And we have a shortage of providers in Sussex County. Any more reimbursement cuts, we will have an even harder time recruiting providers! UGH 19:34:02 From Gretchen Thompson to Everyone: Good to know 19:34:21 From Gretchen Thompson to Everyone: What is CMS? 19:34:39 From Joan Kelley, DE FIMR to Everyone: Centers for Medicare/Medicaid 19:35:58 From Gretchen Thompson to Everyone: Thank you 19:38:01 From Joan Kelley, DE FIMR to Everyone: With all the new weed (marijuana) sales going on in DE...I'm hoping for DE to be flush with cash! 19:38:31 From Stacey O'Rourke to Everyone: How can the A-Team help best to advocate at the federal and state level to keep and expand/improve services? 19:40:09 From lizoneill to Everyone: A recent NY Times magazine article profiled two sisters on Medicaid that live together. One of the paragraphs stated that state governments would most likely drain money away from their “optional” spending, like the Home & Community Based Services. (HCBS) accounts for about 1/3 of all Medicaid spending & more than 1/2 of the optional spending & HCBS would be prime target. Can you speak to this? 19:41:49 From Deb Barbee-Davis to Everyone: can you repeat your email 19:42:07 From Drew Wilson to Everyone: Andrew.Wilson@delaware.gov Deb Barbee-Davis:🙏🏽 19:43:09 From lizoneill to Everyone: - part 2 of above statement about NY Times article…. To compensate for the Medicaid cuts like what happened in the aftermath of the 2008 financial crisis. 19:45:17 From Chris Murphy to Everyone: To advocate at state level, join your state representative district committee to get plugged in. 19:46:44 From Karen James to Everyone: To find out who your state Rep and Senator are, put your address into this link and the names of your local leaders will appear: https://legis.delaware.gov/FindMyLegislator 19:48:16 From Karen James to Everyone: FYI - Senator Coons, Sen Lisa Blunt Rochester and Representative Sarah McBride are DE's FEDERAL leaders. The link above will take you to your STATE leaders. 19:51:56 From Chris Murphy to Everyone: “Entitlement” is an insinuation that the benefits are exorbitant and undeserved. 19:53:17 From pat swanson to Everyone: Would love to have a further conversation around innovation within the HCBS and how they are implemented in other states! lizoneill, Karen James:❤️ lizoneill:➕ 19:54:39 From Alan Scott, CIS DE to Everyone: Cost reimbursement!!! 19:55:00 From Deborah Deldeo to Everyone: Danette, if you need additional assistance with obtaining access to services feel free to contact me via email @ dldeldeo@columbusorg.com or cellular 302-766-5761. 19:55:28 From lizoneill to Everyone: What is it called? Self-directed care? 19:55:32 From Stacey O'Rourke to Everyone: Thank you for the SDAC program! 19:56:06 From Karen James to Everyone: Self Directed Attendant Care program lizoneill:👍 19:56:06 From lizoneill to Everyone: SDAC stands for? 19:57:54 From Stacey O'Rourke to Everyone: if your adult child is on the lifespan waiver are they eligible for the SDAC? 19:58:08 From Olga Zapata to Everyone: https://dhss.delaware.gov/wp-content/uploads/sites/9/2025/06/SDAC-FAQ-122024.pdf 19:58:22 From Stacey O'Rourke to Everyone: My daughter is on LTSS and is eligible. 19:58:30 From Amanda to Everyone: I am an SDAC provider for my son and it has been life changing Karen James:❤️ 19:59:06 From Karen James to Everyone: Is SDAC at risk from Medicaid cuts? It's been a wonderful program for my family! 20:01:04 From Gretchen Thompson to Everyone: SDAC is only for those who are not on the lifespan waiver Stacey 20:01:15 From Olga Zapata to Everyone: https://dhss.delaware.gov/wp-content/uploads/sites/9/2025/06/cmc_respite_faq.pdf 20:03:39 From michelle dwyer and dave dwyer to Everyone: Providers are already running on limited budgets and have trouble hiring staff to support our disabled population, what is going to happen if funding for providers is cut further? I know this will be further down the road but very important 20:03:54 From Stacey O'Rourke to Everyone: If any one has any questions from a parent who uses SDAC I am happy to help. My email is staceyorourke1@aol.com 20:06:36 From Stacey O'Rourke to Everyone: One problem with SDAC is if I want to start the process of residential program I have to switch to the DDDS lifespan waiver. That means while I am waiting for placement I loose SDAC 20:08:26 From Deb Barbee-Davis to Everyone: Thank you for sharing that Joan. 20:08:29 From Amanda to Everyone: That's exactly how it works for us as well in pediatric Joan with SDAC 20:08:37 From pat swanson to Everyone: Not to throw a wrench into this solution but we are now facing a fact that 75% of adults with IDD live with aging parents. We need to start facing that we will have a large population of people who will soon need care and look at expanding options. Olga Zapata, lizoneill:❗ Jen Nardo:👍 ramarashackelford:👍🏾 20:12:16 From Gretchen Thompson to Everyone: Replying to "Not to throw a wrench into this solution but we ar...": THIS!!! 20:12:28 From lizoneill to Everyone: PLUS ONE to Pat’s comment above! Planning and forecasting for services, budgets etc. Jen Nardo:👍 ramarashackelford:👍🏾 20:14:29 From Stacey O'Rourke to Everyone: If you have LTSS you get both SDAC and respite. 20:15:33 From Karen James to Everyone: Diana - message me privately - I have a PDN and had to use respite when we were away for a weekend in May 20:16:36 From Gretchen Thompson to Everyone: Are we all supposed to have case workers for our adult kids who are on medicaid? 20:17:40 From Verna Hensley to Everyone: Gretchen - is your son on the Lifespan waiver under DDDS? 20:17:53 From Gretchen Thompson to Everyone: Yes. My son and daughter both are. 20:17:53 From Ruth Lavelle to Everyone: Can we please get a link to the UD study? 20:18:07 From Stacey O'Rourke to Everyone: You can ask child's doctor for a letter of medical necessity for additional nursing hours. Amanda:👍 20:18:26 From ramarashackelford to Karen James (direct message): Fyi…for our prime meeting hour we had an avg. of 51 attendees and the highest count was 53 20:18:37 From Joan Kelley, DE FIMR to Everyone: As I understand it...if your adult child is on LTSS or Long Term Care Medicaid, then he/she should have a case manager. If you don't have LTSS/LTC M/A and ordinary Medicaid then I don't think you need a case manager. It's a requirement to have Ian's Case mnger come out every quarter. 20:20:17 From Verna Hensley to Everyone: Replying to "Yes. My son and daughter both are.": Do they have a community navigator? 20:21:55 From Ruth Lavelle to Everyone: If on LTSS you get an MCO case manager. If on DDDS Lifespan Waiver you get a Columbus Community Navigator...but good luck getting a navigator who is responsive. 20:22:23 From Joan Kelley, DE FIMR to Everyone: Replying to "If on LTSS you get an MCO case manager. If on DDD...": Oh dear 20:24:14 From Deborah Deldeo to Everyone: If anyone needs to confirm who their Columbus Community Navigator is, feel free to email me: dldeldeo@columbusorg.com or cell: 302-766-5761 Verna Hensley:❤️ 20:24:37 From Karen James to Everyone: Thanks Deborah - very kind of you! Deborah Deldeo:👍 20:26:45 From Gretchen Thompson to Everyone: Yes yes yes! Right there with you Pat. 20:27:05 From Karen James to Everyone: Bravo, Pat! 20:27:37 From Gretchen Thompson to Everyone: Replying to "If on LTSS you get an MCO case manager. If on DDD...": Exactly. We have 2 different navigators for our 2 kids and they are not very helpful. 20:28:02 From Gretchen Thompson to Everyone: Replying to "If on LTSS you get an MCO case manager. If on DDD...": AND the turnover rate there is crazy. We have a new one every 6 months. 20:29:09 From Verna Hensley to Everyone: Thank you Drew!! 20:29:28 From Stacey O'Rourke to Everyone: Thank you so much Drew! 20:29:33 From michelle dwyer and dave dwyer to Everyone: Well said Pat! Thank you Drew for all the information and the open honest conversation 20:29:40 From Ruth Lavelle to Everyone: Thanks all! 20:29:49 From Amanda to Everyone: Thank you so much Drew!! 20:29:49 From ramarashackelford to Everyone: Thank you Drew for such an informative briefing and your transparent, clear responses to our questions. Luz Apolayo, lizoneill:👍🏼 20:30:14 From Stacey O'Rourke to Everyone: Thank you Liz, Verna and Pat for your comments!